Reports with the Results of Our Work
Dec.-03: Dr. Glorieux
will sponsor Marco Vinicio of Ecuador.
12-12-03: María Barbero deposited 120 euros to cover the treatment with pamidronate for 6
months of their godson Alejandro of Ecuador
Font Gonzalo made a deposit of 300 euros to cover the 2004 treatment with
pamidronate and various necessities the Abigail of Ecuador.
4-12-03: Anna Becerra,
godmother of Marghori of Peru, made a transfer of 120 euros for the
treatment of the girl.
4-12-03: In her
presentation of the FEOI project in the Congress of AHUCE, Lucia
Travez presented an elaborate DVD with images and testimonies of
mothers and children with OI. This audiovisual document which has a
big impact, was distributed to the godparents of Ecuadorian children.
Thanks to Jose Antonio and Rafael for their collaboration in copying
the material, verifying that each DVD works, making the covers, and
handling the shipping.
4-12-03: Dr. Parra and
his wife Mercedes Viudes will sponsor Nicolas of Ecuador. They
deposited 120 euros to cover the semestral treatment with
2-12-03: Tere Ahedo did
two things: 120 euros for the treatment of Rosa del Alba, her Peruan
goddaughter, and 50 euros for the campaign of Ecuador. Thanks also
to her mother, Marí Teresa Arias Carracedo who solidified the
situation of the Ecuadorian children and donated another 50 euros
for the operations of the month of January.
1-12-03- Kathia Rolando
Hurtado and Lucia Travez, coordinators of the program of godparents
in Peru and Ecuador received several transfers from the following
For the children of Peru:
60 euros from Granada
for Kely Nicole( Treatment of 3 months with pamidronate)
120 euros from Ana
Becerra for Marghori (Treatment of 6 months with pamidronate)
300 euros from Tina
Parcero for Luis Alberto(240 euros for the teatment of 1 year
with pamidronate and 60 euros for other necessities that the
child may have)
150 euros from
Araceli and Jose for Ronald (120 for the 6 month treatment with
pamidronate and 30 euros for other necessities
Total shipped to Katia
Rolando Hurtado:630 euros
For the Ecuadorian children:
60 euros from Adria
for Patricio(3-month treatment with pamidronate)
120 euros from Susana
Barquilla and Isabel Reina for Jonathan(6-month treatment with
54 euros from Gloria
Alvarez for Bernardo(3-month treatment with pamidronate)
54 euros from Miguel
Angel and Monse for Samantha(3-month treatment with pamidronate)
100 euros from Linda
Edwards for Abigail( treatment and other necessities)
20 euros from Yvonne
Hagelstein for Briseida Massón( 1-month treatment with
120 euros Hans and
Vero Gaedke for Luis (6-month treatment with pamidronate)
250 euros from Jose
María and María Angeles for Erik Mora( 1-year treatment with
20 euros from Anna
for Erika Massón (1-month treatment with pamidronate)
120 euros from María
Barbero for Ronnie Salcedo( 6month treatment with pamidronate)
Total shipped to Lucia
Travez: 918 euros
Various godparents and people connected to OI have made deposits for
the Ecuadorian campaign which we have transferred to the
president of the FEOI:
50 euros from
100 euros from Mr.
Katz, godfather of Javiera
30 euros from Jose
María, María Angeles, and Jose
60 euros from
Susana Barquilla and Isabel Reina
Total transferred for the company “SOS Ecuador”: 240 Euros
During the last few
days of November, December, and January of 2004, we made a
special campaign intended to collect funds for the operations
that the well known Dr. Fassier will perform for the Ecuadorian
children. If you want to participate by donating or helping out
you will find more information on:
Barbero deposited 120 euros for the treatment with pamidronate
of Ronnie, her Ecuadorian godson
26-11-03: We received
from Germany a donation of 20 euros from Yvonne for Erika
and another 20 euros from Anna for Briseida, two Ecuadorian sisters.
These godparents, recently incorporated into the program will make
monthly deposits of 20 euros.
and Isabel deposited 120 euros for the treatment with
pamidronate of Jonathan their Ecuadorian godson.
deposited 60 euros for the treatment of Kelly from Peru.
godmother of Abigail translated to English the pages of godparents.
Many thanks for your collaboration!!
18-11-03: Adriá Vidal
contributed 60 euros
for the child they are sponsoring in Ecuador, Patricio. Thank you!!!
and Hans Gaedke contributed 120 euros for treatment
for the child they are sponsoring in Ecuador, Luis Felipe.
29-10-03: José María,
María Ángeles and Silvia –their 4 year old daughter- contributed
250 euros for Erick’s yearly treatment with pamidronate.
Barbero contributed 300 euros, which were given personally to
Lucía Trávez, for treatment during 2004 for little Raquel,
25-10-03: Lucía Trávez’s
participation in the AHUCE Congress turned out to be very positive
for the programme:
-> Lucía brought with her a DVD containing an excellent documentary
produced by the FEOI concerning how OI affects children and their
families in their own setting and country. It is professional and
very realistic, but extremely heart warming. It will mailed to the
sponsors of Ecuadorian children in November.
-> Several people contacted Lucía and María to sponsor
The following are already confirmed: Dr José Ignacio Parra
will be sponsoring Marco Vinicio; José María and
María Ángeles will be sponsoring Erik; María Barbero
will be sponsoring Ronnie, staring with the December
application; Hans and Verónica, a couple living in
Germany, will be sponsoring Luis Felipe; Ivonne
and Anna, also from Germany, will be sponsoring Érika
and her sister Briseida.
-> We received another 110 euro donation from Mr Rob Van
Welzenis, the honorary president of the OIFE. This money was
donated to help Ecuadorian children and it was given
personally to Lucía Trávez.
-> We have two new helpers for the programme: Elena
Montalvo, who has a nephew with OI, has offered to help us by
translating into English for our contacts with English-speaking
Montserrat, whose daughter is Thalía, a little girl with OI,
has offered to correspond in Dutch with a person who has an
association in Holland. The idea is that we could refer cases of
adults with OI in Latin America there.
-> We are pending
confirmation of sponsors for Nicolás.
Many thanks and welcome to all the programme’s new sponsors and
has a sponsor!!!.
Adriá: many thanks for continuing to help us!!!
12-10-03: Sponsors needed!!!
Patricio, 5 months, Briseida, 11, and Erika,
14, need help to pay for their pamidronate treatment. The three
children live in Ecuador.
17 to 19-10-03: Lucía
Trávez and Tina Parcero –as well as María Barbero, who is working on
organising the event- will be taking part in the 10th
AHUCE Congress in Spain.
Lucía will be giving a brief talks on the progress made in
the FEOI and the Foundation’s ultimate goals.
Tina, the programme’s first sponsor, will be working as an
interpreter and translator.
Many thanks to both of them!!!
You can find information
about the congress on the AHUCE web site:
04-10-03: news from Peru!!!
Thanks to a donation from Mr Van Welzenis, the honorary
president of the OIFE, John, from Peru, has a new customised
wheelchair, with a safety belt and a board to help him write and eat.
26-09-03: we received a
donation of 54 euros from Gloria Álvarez, who is sponsoring a
little Ecuadorian boy.
26-09-03: we received a
donation of 100 euros from Linda, who is sponsoring a little
17-09-03: we received a
donation of 54 euros from Miguel and Montse, who are
sponsoring an Ecuadorian girl.
16-09-03: we received
donation of 50 euros from Araceli and José, who are
sponsoring a Peruvian boy.
04-09-03: we received a
donation of 300 euros from Tina Parcero who is paying for
treatment for a Peruvian boy.
01-08-03: we received a
donation of 120 euros from Anna Becerra, who is paying for
pamidronate treatment for a Peruvian girl.
31-07-03: Kathia Rolando
Hurtado and Lucía Trávez, the programme’s coordinators in Peru and
Ecuador, received transfers with contributions from our sponsors.
The honorary president
of the OIFE, Mr Van Welzenis, for John, 100 euros (donation);
for Kelly Nicole, 60 euros (pamidronate treatment for three months);
for José Luis, 120 euros (pamidronate treatment for six months);
for Jorge, 120 euros (pamidronate treatment for six months);
María Teresa Ahedo
for Rosa del Alba, 120 euros (pamidronate treatment for six months);
Raquel Gómez Prada
and Juan Manuel García Simal, 240 euros for Milagros (pamidronate
treatment for six months)
"Gloria II" (Gloria
Álvarez de la Torre) for Bernardo, 54 euros (pamidronate
treatment for three months);
and Isabel Reina, for Jonathan, 120 euros (pamidronate
treatment for six months);
for Abigaíl, 100 euros (periodical donation to cover the little
girl’s sundry requirements);
Miguel Ángel Fernández
and Montse Calvo Álvarez, for Samantha Paulina, 54 euros (pamidronate
treatment for three months);
for Wilson, 150 euros (donation to cover some of his miscellaneous
Total transfers: 1238 euros
Thank you for the
contributions, welcome to the new sponsors and our gratitude to
Gloria and Rafa for their inestimable help.
González, who collaborates with the programme, received a transfer
sent by María Rosa Piquer -100 euros- to help the Mexican boy
she is sponsoring, Luis Enrique.
http://feoi.osteogenesis.info, you will find a link that says "This
page is in memory of Marcelito Paccha", where you will find
photos and a few words from Lucía, saying farewell to this little
Marcelito was being sponsored by Adriá, who we thank for his help,
his affection and his desire to remain in the programme.
May-03: the president of
the FEOI, Lucía Trávez, received a transfer with all
the money paid in by sponsors in March-April:
5/3/03 Julián Font:250
euros for Abigaíl, for her yearly treatment with pamidronate;
5/3/03 Linda Edwards:
100 euros to buy a buggy for Abigaíl;
5/3/03 María Barbero:
120 euros to buy clothes and food for Abigaíl;
23/3/03 Adriá Vidal
López: 60 euros for Marcelito’s quarterly treatment with
April 2003: Alicia
Barbero: 200 euros for Raquel, to cover various expenses and
her most urgent needs.
5-3-03: 250 Euros were received that will be used to pay for a year’s
treatment with pamidronate for an Ecuadorian girl.
3-3-03: 100 Euros were received that will be used to pay for baby’s
equipment for an Ecuadorian girl.
3-3-03: 120 Euros were received that will be used to pay for
supplies, baby food and clothing for an Ecuadorian girl.
28-2-03: Two more children with OI have been born to poor families in
Ecuador in the last three months. We are looking for sponsors for both of
28-2-03: After solving different administrative problems involved in
sending the money, we have managed to send a transfer of 1,500.00 euros to
the Ecuadorian Osteogenesis Imperfecta Foundation (FEOI:
representing the following donations:
120 euros from Susana Reina and her mother to pay for the treatment of the
boy they are sponsoring;
240 euros from María Barbero for a year’s treatment with pamidronate
for the boy she is sponsoring;
240 euros from Alicia Barbero for a year’s treatment with pamidronate
for the girl she is sponsoring;
290 euros from Mr Katz for a year’s treatment with pamidronate and other
expenses for the girl he is sponsoring;
375 euros in donations from different people to pay for a year’s
treatment with Fosamax (costing one euro a day) for an Ecuadorian child;
235 euros collected by Carmen Ugarte (Spain) from several of her
colleagues at work. The money will be used to pay for healthcare material,
vitamin and mineral supplements for twenty or so children being cared for
by the Foundation.
The bank transfer cost 60 euros but, after applying the exchange rate,
1,519.92 dollars were received by the Foundation.
January, 2003: Thanks to physiotherapy, the boy sponsored by Mauricio
Herzberg can now stand.
02-01-03: Donations were received that will be used to pay for a year’s
treatment with pamidronate for an Ecuadorian girl.
Maria Barbero (Spain) is sponsoring an Ecuadorian girl (Pamidronate
Julián Font Gonzalo (Spain) is sponsoring an Ecuadorian girl
Linda Edwards (UK) is sponsoring an Ecuadorian girl (Pamidronate
Jean Daniel Katz (Switzerland) is sponsoring an Ecuadorian
girl (Pamidronate treatment).
María Isabel and Susana Barquilla Reina (Spain) are
sponsoring an Ecuadorian boy (Physiotherapeutic treatment).
Alicia Barbero (Spain) is sponsoring an Ecuadorian girl (Pamidronate
Maria Barbero (Spain) is sponsoring an Ecuadorian boy (Pamidronate
César Espinel (Spain) is sponsoring a Peruvian boy (Pamidronate
Gloria Palomeque (Colombia) is sponsoring a Peruvian boy (Pamidronate
Tina Parcero (Spain) is sponsoring a Peruvian boy (Pamidronate
Carmen Ugarte (España) ha reunido entre sus compañeros de trabajo
235 euros que se emplearán en la compra de material sanitario y
suplementos vitamínicos y minerales para los niños de escasos
recursos de la Fundación Ecuatoriana de Osteogénesis Imperfecta.