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Godparents for

The Situation  
The Idea  
The Means  
The Procedure  
The Program  
The Money  
How We Work  
We Are Volunteers  
Contact Us  
Biweekly Reports with the Results of Our Work  
What I Told at Annecy  


We Are Volunteers


  • spend hours in front of the computer collecting information about the children
  • write letters to sponsors and associations
  • translate these letters and the children’s clinical histories for possible treatment abroad
  • sponsor children
  • are in direct contact with the children and transmit their needs to possible sponsors and organize the treatments
  • work on these web pages to reach as many people as possible and to keep the information current and transparent
  • see to it that the donations reach the children they are meant to reach and are not lost on their way there
  • bombard friends and relatives with outlandish help requests

We are all volunteers.

We do it because we want to help some children, who, on top of having been born with a congenital disease, are so unlucky as to be in a country without sufficient healthcare infrastructure. All were born in families which can’t support the economical demands of the child’s illness. Some of the children have been abandoned by their parents. Others have other diseases besides OI.


We are not an association because we want to avoid expenses and bureaucracy. We are flesh-and-bones people who are working to help other flesh-and-bones people. We do it as well as we can and with all the enthusiasm and energy we can muster.


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